Genetics, Documentary, Genomics, Rare Disease, Community, Diagnosis, DNA, Students, Education, Mass General Hospital, Curriculum, High School, Personalized Medecine
William Johnson is a power soccer player, and a coach. We caught up with William in Massachusetts where he schooled his teammates at power soccer. While William's teammates are good soccer players, power soccer is a complete different set of skills and William excels.
He zips around the basketball court, spinning on a dime, and accelerating to shoot or pass the ball. William has Type 2 Spinal Muscular Atrophy (SMA). He began receiving the Spinraza treatment for SMA and reports seeing limited, yet significant improvement.
Check out this video of William and follow along for more of his and other Rare Stories.